Monthly Archives: July 2014

Day 252 – We’re in Rehab!!!

Cindy was moved to the hospital’s rehab today.  It was a quick trip up to the fourth floor.  She has a private room and it’s very spacious.  Everyday, she will be kept busy for three hours a day with various activities that will get her ready to go home and be able to to return to her previous lifestyle.    The picture below shows her schedule fohr tomorrow, her first full day in the rehab.

So Busy!!!

There’s Speech Therapy Physical Therapy, and Occupational Therapy.  Sometimes she even gets to rest.  They will fit that in between all the other activities.

Day 251 – Rehab at the Hospital

Cindy has been in a very large air bed that has been difficult for her to maneuver in.  They changed her to a smaller bed today and she is much more comforable.

She also had Physical Therapy today.  She was able to get up mostly by herself, use a walker and get into a wheel chair by herself.  That was pretty amazing.  Everyone was impressed.  Then there was a discussion with the Physical Therapist Occupational Therapist, her day nurse and her nursing aide.  They thought that Cindy might be a good candidate to go the the rehab – in the hospital.  Who knew that the hospital had a rehab?  Just the kind that Cindy needs! 

They talked to the Social Worker, the same one that told us yesterday that the only rehabs with space for Cindy were in San Leandro, San Rafael, Sacramento and Southern California.  The Social Worker acted as if she didn’t know about the hospital rehab.  After she thought about it, she agreed that the hospital rehab would work well for Cindy. 

How did she not know and why was that never a choice given to us?  Even last year?

We (Cindy, Rita and myself) took a tour of the rehab.  It was perfect.  Cindy would be in a large single room with a bathroom that had a shower.  She would get three hours of Physical and Occupational Therapy every day except Sunday (just one hour).  There is a game room, a dining room, a gym, a recreational area and two outside garden areas.

We are just waiting for the insurance company to approve Cindy and then she will be moved.  The move will probably take place tomorrow.

Day 250 – Celebrate!!!


Cindy had an X-Ray today to see if the food she’s eating by mouth is going down her esophagus or her lungs.  This was a very important test for her to see if she could have the nasal gastric tube removed. The test was successful.  That is, the found is going down her esophagus.

Even with the good news, the Speech Therapist wants to be cautious.  They are going to turn off the food that flows through the nasal tube and have her eat five small meals a day.  If she is able to consume enough nutrition, they will remove the nasal tube.  This is great progress. 

The next step in the recovery plan is to move Cindy to a rehab within the next five days.  Unfortunately, there currently are no beds in any facility in the area.  This is not good, since Cindy relies on her Rita,Mary, and Debbie for support.  We’ll see how things go in the next few days.

Day 249 – Mayhem at the Hospital

Cindy continues to give everyone a hard time.  She is fussy about breakfast, lunch and dinner.  She wants her trach out.  And she doesn’t want to be  woken up from her naps because the nurse needs to do something.

So what does this have to do with mayhem?  Nothing.  I just thought I’d throw this in.  When I got to the hospital yesterday, there were a bunch of motorcycles parked in the parking lot at the hospital.  When I walked inside, there must have been three dozen members from the Mayhem Motorcycle Club in the lobby. 

Image from http://www.trademarkia.com/mayhem-mc-85861571.html

I have seen other large groups of people, families, in the lobby – even for days at a time.  But I didn’t expect to see members of an affiliate gang of Hells Angels hanging out quietly next to the fish tank and grand baby piano, being very supportive of one of their friends who had an accident early that morning.  It’s just one of those images you don’t forget.

Day 248 – Physical Therapy

Cindy started Physical Therapy today.  She was able to sit on the bed on move herself from side to side.  She was almost to get up, but it is too soon.  Not bad for being in bed for a month.  Physical Therapy will continue on a daily basis.

Time for a funny story.

Cindy asked a nurse for some ice with water.  The nurse said she could have either ice OR water but not both.  Cindy asked why.  The nurse said that she might spill it.  Cindy said I’m allowed to pee in the bed and you have no problem cleaning it up, but you’re afraid I’m going to spill water? 

Cindy:   I would like some ice with water.
Nurse:  You can have either ice OR water but not both.
Cindy:  Why can’t I have them together?
Nurse:  You might spill it on yourself.
Cindy:  I’m allowed to pee in bed and you have no problem cleaning it up, but you’re afraid I’m going to spill water on myself?  Please bring me ice with water.
Nurse:  I can bring you ice OR water but not both.
Cindy:  Why can’t I have them together?
Nurse:  I can’t trust that you are able to handle the ice with water.
Cindy:  If I show you my driver’s license I can show you .I’m old enough to handle ice with  water.

This went on for a while and, of course, Cindy got her ice WITH water.

And then she peed in bed and the nurse had to clean it up.

Day 247 – Happy Fourth of July

When I walked into Cindy’s room today, she said “Call Rita.” 

“OK,”  I said.  (Well, I first asked what was going on a few times, and then I said OK.)

I called Rita and put her on speaker phone.

“I can eat popsicles.”  Cindy said with a smirky smile.  She was so pleased.  She had the next swallow test this morning and passed it.  All she has been asking for is popsicles and now was her big day.  So Rita bought her a box of popsicles so that the staff could put them in the freezer and Cindy can have one whenever she wants. 

And now a word from our sponsor.

Dr. Bear has ordered everyone to have a Happy Fourth of July!!!

Day 246 – First Food Test was Successful

Cindy is now able to eat (not munch) on thick pudding.  Her diet now consists of ice chips and pudding.  Today she had vanilla pudding. The Respiratory and Speech Therapists will continue to test her ability to eat/drink a few times a week.

This is what Cindy’s lunch tray looked like.

What’s under that cover?

 Pureed Meat and Pureed Potatoes with gravy.  The green stuff peeking out is pureed vegetables.

Fruit

 Vanilla Pudding

Cindy tried the pureed meat and potatoes.  She almost choked because she isn’t ready for that yet.  Just the pudding.  So she started on the pudding and was full after a few bites. She currently prefers the ice over the food.  We’ll be watching what she eats over the next few days.  We just know there is no BBQ for her on the Fourth of July. 

Day 245 – Swallow Test was Successful!!!!

Cindy passed her Swallow Test.  The Respiratory and Speech Therapists did a swallow test today.  That meant giving her beet infused ice and sticking a tube down her throat to make sure it landed in the right spot – which it did.  How much did she want the ice?  She HATES beets.  We all know she won’t eat anything she doesn’t like.  So swallowing beet ice was really a big deal.  Tomorrow Cindy will have a food test to see if she is able to eat. 

Ice!  Ice!  My Kingdom for more Ice!!!

The doctors are recommending that Cindy be moved to a sub-acute nursing facility sometime in the near future.  We asked that she not be moved as quickly as she was last year when she was transferred to the rehab in San Leandro as soon as she was trached.  The move last year seemed to be due to a decision by the insurance company and had nothing to do with Cindy’s health issues..  A social worker came to see her this afternoon.  We requested a less aggressive transfer that would be more beneficial for Cindy’s total recovery.

Day 244 – Guess Who’s Talking!!!

Cindy!!!  She is able to talk by using a Passy-Muir valve that is attached to the traach. She was breathing on her own most of the day.  She’s looking good and seems happier than she has been in a while.   The more ‘aggressive’ pulmonologist is back and pushing Cindy along.  Her attitude is “GET ME OUT OF HERE’ so she’s trying the best she can.

Days 242 and 243 – Just Passing Time


Sorry I skipped a day in relating Cindy’s progress.  The truth is, there was absolutely nothing going on.  Cindy slept and watched TV most of the day yesterday and just hung ot in her chair, watching the clock for a good part of the day today.  

Watching the Clock
The swallow test did not go well today.  It’s probably too early anyway.  .She will have another swallow test tomorrow.